Face-Off with Dementia: How Hope and Courage Made a Difference

My husband had Lewy body dementia (LBD). Even as a registered nurse, I had only a vague idea of what it was. From the little information I could find, I knew that the prognosis was not good. It was then that I started looking for accounts of people with that diagnosis. What was it like for them and for their caregivers? Every story I read helped me feel less alone and more informed.

Because the course of the disease is a little different for each individual, it was difficult to know what to expect next. I recorded our journey over the next five years. Writing about the highs and the lows helped me honor the process. It is my hope that by adding this story to the overall picture of LBD that others will find their journey less frightening, more purposeful, and more honorable in spite of the difficulties.